Tag Archives: autism

The painfully slow process of getting SN help

17 Sep

Not posted a blog for a long time.
 Don’t know who will read it as I think one needs to post regularly to get followers.
 I’ve moved since I last posted a blog. That took most of my time.

 I need to come back & have a place to let out all my feelings about my son & his special needs.

 He is autistic & has global developmental delay.
 He is 4 & has just started full time school.
 His extra needs 1st came to light when a health visitor did his 3 year check in May 2012.
 He was referred to speech therapy. He has had 3 speech therapy appointments since then.
 When he started nursery, I saw he was not like his peers. I spoke to the Senco at his nursery in February this year. We agreed that he needed a referral to a paediatrician to discuss my worries.
 I saw a consultant in April this year.
 He saw Olly for about an hour & a half. Then we were to have more appointments. Another one in 6 months with him. So that should be October this year. It is in December.
 Olly also needs a Multi Disciplinary Assessment. Olly will go in front of a panel of people who will say for certain that he is autistic. This appointment is very important. He is currently 36th on the list for an appointment & apparently he may be seen by Christmas. Except they only do 1 appointment a week where I am. So him being seen by Christmas is overly optimistic. 

Today I have started the process to get a statement of needs for Olly so he gets extra help at school. He is “ok” in reception class but he will really need the extra help by year 1. We need to start the process now, in order that his extra help will be available by the time he starts year 1.

I am grateful for all the help that is available. But getting the help is utterly exhausting.

 Thanks for reading & any feedback regarding what I’ve written or blogging would be lovely.

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This morning

22 May

It was photo day in nursery today.

A few months ago I bought some t shirts for Olly. They have animals on the front. He loves animals.
He also hates new clothes, clothes he is not familiar with.
I put out the 3 t shirts & asked him to choose one from the lion, giraffe or elephant. 
He refused to look at them. So I selected one. And attempted to put it on him.
And he had a huge melt down. “No top, no top” he yelled.
 
I went & got a top he was familiar with.
 
He is growing out of many of his tops, so I am going to have to leave his new tops hanging around so he can get used to them.
 
Then I needed to comb his wild hair. After 6 laps of the downstairs, I had managed to get the comb through one section. This was a success!
 
We get to nursery.
 
As the photographer is there, the set up is a bit different.
 
He wants to go & sit in his normal place where he changes from his outdoor shoes. He can’t, so I stop him or he will ruin someone’s photo! So he plonks himself down where he is. In the way. I manage to quickly change his shoes.
 
He is supposed to go into the other room. He Will Not. “No no no” he yells.
 
So I pick him up & remove him & take him to the other room.
 
All this & it was only 0915! 
 Image

The daily battle.

20 May

When you have a child with autism each day can be a battle.

From getting out of bed the right way…his way. To how he wants his cereal today or the toast cut. Often these things are done wrong & this results in a melt down. The next day I will try & do the same thing to avoid a melt down. 
 
The point of today’s blog is not only do I have to battle with my son, but also the health professionals.
 
I have had a letter through referring Olly for his blood tests. Letter says for him to go to paediatrics. Call hospital. Get put through to paediatrics. They won’t do his blood tests as he’s over 4. He was 4 last month.
 
Call normal blood test department. They won’t deal with him as he’s a child & also due to his autism & global delay.
 
Call hospital reception again. Lady was lovely. She couldn’t believe the trouble I was having. She decided to put me through to the children’s ward & explain my situation to them.
 
So, this Thursday, Olly is going to the children’s ward of our local hospital to get his bloods done. We have a 10:30 appointment but may have to wait if there are emergencies. This is not a problem. I will take snacks & books for Olly.
 
I am amazed that it was so hard to book a requested blood test. 
 
This is how it is. A daily battle.
 
I wouldn’t have it any other way. I will fight all the way for my boy.