Tag Archives: global delay

This morning

22 May

It was photo day in nursery today.

A few months ago I bought some t shirts for Olly. They have animals on the front. He loves animals.
He also hates new clothes, clothes he is not familiar with.
I put out the 3 t shirts & asked him to choose one from the lion, giraffe or elephant. 
He refused to look at them. So I selected one. And attempted to put it on him.
And he had a huge melt down. “No top, no top” he yelled.
 
I went & got a top he was familiar with.
 
He is growing out of many of his tops, so I am going to have to leave his new tops hanging around so he can get used to them.
 
Then I needed to comb his wild hair. After 6 laps of the downstairs, I had managed to get the comb through one section. This was a success!
 
We get to nursery.
 
As the photographer is there, the set up is a bit different.
 
He wants to go & sit in his normal place where he changes from his outdoor shoes. He can’t, so I stop him or he will ruin someone’s photo! So he plonks himself down where he is. In the way. I manage to quickly change his shoes.
 
He is supposed to go into the other room. He Will Not. “No no no” he yells.
 
So I pick him up & remove him & take him to the other room.
 
All this & it was only 0915! 
 Image

The daily battle.

20 May

When you have a child with autism each day can be a battle.

From getting out of bed the right way…his way. To how he wants his cereal today or the toast cut. Often these things are done wrong & this results in a melt down. The next day I will try & do the same thing to avoid a melt down. 
 
The point of today’s blog is not only do I have to battle with my son, but also the health professionals.
 
I have had a letter through referring Olly for his blood tests. Letter says for him to go to paediatrics. Call hospital. Get put through to paediatrics. They won’t do his blood tests as he’s over 4. He was 4 last month.
 
Call normal blood test department. They won’t deal with him as he’s a child & also due to his autism & global delay.
 
Call hospital reception again. Lady was lovely. She couldn’t believe the trouble I was having. She decided to put me through to the children’s ward & explain my situation to them.
 
So, this Thursday, Olly is going to the children’s ward of our local hospital to get his bloods done. We have a 10:30 appointment but may have to wait if there are emergencies. This is not a problem. I will take snacks & books for Olly.
 
I am amazed that it was so hard to book a requested blood test. 
 
This is how it is. A daily battle.
 
I wouldn’t have it any other way. I will fight all the way for my boy.

 

11 May

So, new year, new blog. And then I lost my mojo.

I didn’t really know what to blog about. Other people’s blogs were far more interesting.

Now I have some stuff going on & things to blog about.

I have the joys of selling my house & buying another one. The most stressful thing at the moment is keeping it tidy for potential viewers.

My youngest son has been diagnosed autistic & with global delay. I am coming to terms with that & trying to get all the support & help for him that I can.

Also I am on yet another weight loss journey. 3 years ago I lost weight & got to a target weight I was happy with. And then I put most of it back on. Buying some jeans in my current size & finding out the button wouldn’t do up was a bit of a shock. I decided that the company I bought them from had changed their sizing. Of course, they hadn’t.

So I have a few things I can write about & I hope you will find interesting to read.

Have a lovely weekend & I hope you will come back & read my next update.